Pediatric Extended Care Center Calls for Change in Age Restrictions to Aide Parents of Medically Fragile Children

House Bill 1960 Vulakovich – (PN 2674) Amends the Prescribed Pediatric Extended Care Centers Act changing the age limit from eight years to 21 years of age effective immediately. HB 1960 moves to the PA Senate Committee on Appropriations in January 2012.

Parents of medically fragile children need options. As the first Pediatric Extended Care Center (PECC) in Pennsylvania, Child’s Way®, a program of The Children’s Home of Pittsburgh & Lemieux Family Center, gives families an alternative and supplement to home nursing and therapeutic care, which medically fragile children require. Child’s Way is dually licensed by the Department of Health as a PECC and by the Pennsylvania Department of Public Welfare as a day care center.

Unfortunately, current law restricts the care of children in PECCs to the age of eight; leaving no options for parents whose children age-out—children like A.J.

On December 16, 2011, A.J., who has attended Child’s Way since he was just five-months-old, turned nine. A.J. has Congenital Muscular Dystrophy, chronic lung disease, scoliosis and seizures. He is ventilator dependent, requires a feeding tube, and receives special liquid feedings to allow him to thrive and control seizure activity. A.J. is administered four medications for seizures, aerosol treatments for his lung disease, and several other life-sustaining medications and treatments every day. While at Child’s Way, A.J. has consistent nursing care, which has aided in evaluating and preventing many healthcare complications.

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Spotlight on eKidzCare

For those of you who may know someone who needs special pediatric services, you may want to give eKidzCare a call.

To learn more about this wonderful organization, please visit http://ekidzcare.com/. eKidzCare is a Pediatric Home Health Care provider and is the newest member of the EPeople Health Care, Inc. Family of Care. They offer a wide range of Pediatric services and are looking forward to becoming a leader in the pediatric home care industry.

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Physician’s Practice Management—A Wellness Program for Your IT Infrastructure

James Troup

By James Troup

Much like a Wellness Program is key to maintaining physical health and longevity, a proactive approach to protecting data integrity and managing your primary IT infrastructure can make all the difference to your business and bottom line. Equally important is a prescription for a Disaster Recovery Plan. This secondary level of preventative maintenance provides peace of mind and could prove to be the lifeline that will rehabilitate your Practice in the event of a disaster.

As CEO of Pediatric Alliance, one of the largest physicians’ practices in Pittsburgh, I recently went through the process of evaluating our IT infrastructure. When Pediatric Alliance moved patient records to an Electronic Health Records (EHR) system about 2 years ago, we rolled out each of our 14 practice locations one at a time, making adjustments along the way.  During this implementation, it became readily apparent how much time I was spending worrying about our physical IT infrastructure, and how little time I had to focus on customizing the new EHR system and teaching our docs how to use it.

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Hanging Out In The Widdahood

By Catherine Tidd

This may sound a little strange…but I’ve had two lives.

My first life was pretty typical:  House in the ‘burbs, nice husband who was pretty easy on the eyes, three kids I was sometimes tempted to put out on the driveway with a sign that said “free to a good home” but who were overall pretty good.

My second life started in July of 2007 when I suddenly became the “it could be worse” person of my social circle.  You know…that girl who, when you’re having a bad day, you think, “At least I’m not her!”

Not really who I wanted to be in my early 30s.

I became that person because my husband was in an accident on his way to work and died a few days later, leaving me to raise three small children on my own.

That’s right.  At the ripe old age of 31, I became a widow and the most “single” single mother I know.

The year that followed was a complete blur of what I now like to call “manic confusion.”  I seemed determined to prove all of the experts wrong when they said “time would heal.”  I didn’t have time for time to heal.  I wanted to get my life back on track, find a new career, go back to school, sell a house, buy a new one, get my body in decathlon shape, and get my 3 kids under 5 into Harvard.  And it all needed to happen yesterday.

I’m not wild about the word “denial” but that’s the closest thing I can think of to describing it.

When I finally came up for air and slowed down enough to digest that this was really my life, I started looking for someone like me who might understand my brand of crazy.  And you know what I found?

A big, fat NOTHING.

In my quest to find people who might understand what it’s like to date when you’re an emotional wreck and why it’s perfectly normal to let loose on unsuspecting strangers at Wal-Mart…I became that person for everyone else.  I started writing a blog under the name “Widow Chick” on subjects like “are you’re still ‘in-lawed’ with your in-laws” and “becoming your own superhero when you learn how to start your snow blower and mow your own lawn since there’s no one else around to do it.”

The next thing I knew, Widow Chick had almost 1000 people following her on Facebook.  And after awhile I realized:  They’re not following her because of her Cindy Crawford looks (I know…it was a surprise to me too).  They’re following her because they’re looking for each other.

So, in January of 2011, I launched the first free peer support network dedicated to anyone who has lost a significant other called www.theWiddahood.com.  The best way I can describe it is that it’s kind of like a Facebook for widows.  They can instant message, blog, form discussion groups and all kinds of stuff.  But the best part about it is that they can do a location search, look at someone’s profile to see what they have in common…and finally find each other.

And now, three months later…that’s exactly what almost 1000 widows worldwide are doing.

Four years ago, I would have said there was no way I could be the kind of person who could pick up a life that had been so completely broken and glue it back together again.  But you know what?  We’re all a lot stronger than we think we are.  If you get nothing else from this story, just remember this:  You never know where life is going to take you and it can change any second.  How you deal with it is completely within your control.

And you should always have enough wine on hand to do a little soul-searching when you need it.

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